Resource and Support Center

Informational Materials 

A Practical Guide to Building a Healthy Family 

Table of Ashkenazi Jewish Genetic Diseases 

What's Jewish About Breast and Ovarian Cancer: 5 Things You Should Know 

Program for Jewish Genetic Health brochure 

Frequently Asked Questions About Genetic Testing 

For Rabbis and Community Leaders 

What's a Rabbi to Do? 

Dr. Norman Blumenthal's "What to Say and Not to Say" (useful phrases to say and to stay away from when a congregant calls you with a crisis)

Basic Guide to Genetic Testing (a two-sided card for Rabbis to use with their congregants for a simple explanation of genetic testing)

YUTorah.org (search term: Genetics)

Jewish Genetic Disease Consortium - Rabbinic Training Program 

Resources Outside of the PJGH 

There are many outstanding organizations already working hard in the realm of Jewish genetics, throughout our country and beyond. We are proud to work with these organizations in the shared mission of promoting Jewish genetic health. We encourage you to visit their sites as well!

Community Screening and Education Groups    

a. Our PJGH Community Screens
b. The Center for Jewish Genetics 
c. Jewish Genetic Disease Center of Greater Phoenix
d. Victor Centers for Jewish Genetic Diseases
e. Greater Omaha Committee for Jewish Genetic Testing
*also see Gift of Life—this is testing to identify bone marrow donors

Disease Education and Support Groups 

a. Jewish Genetic Disease Consortium
b. Sharsheret – supporting women and families facing breast cancer at every stage
c. Chai Lifeline – helping families with children facing life-threatening or life-long illness
d. Shalva – programs for children with disabilities in Israel

International Resources 

a. The Danek Gertner Institute of Human Genetics 

Jewish Community Support and Outreach 

a. UJA-Federation
b. Yeshiva University Center for the Jewish Future 

Jewish Thought, Law, and Ethics 

a. YU Torah Online (use search term “genetics”)
b. Yeshiva University Medical Ethics Society
c. Nishmat – advising in the area of Women’s health and halacha

For more clinical information on genetic diseases, see: 

a. Genereviews
b. Genetic Alliance
c. American College of Medical Genetics